Skip to main content

To: Matt Hancock

For cortisones sake ! give steroid dependents the life saving injection they need

We would like the British government to step up and help get a life saving injection pen for adrenal insufficient patients developed.
People with allergies have life saving EpiPens in times of anaphylactic shock. Adrenal patients have an old fashioned glass vial a syringe and a 2 inch needle. It is not acceptable in this day and age. They are both at risk from quick death in a crisis.

Why is this important?

People are dying. Adults teenagers and children. My daughter Molly was diagnosed in 2013. Our life saving injection consists of 3 pieces. A glass vial containing liquid medicine. A syringe. And a 2 inch needle. Patients are expected to draw up the medication in a syringe, attach a needle and then intramusculary inject it into the thigh. All whilst going into a coma because their organs are shutting down. This is not acceptable. My daughter cannot do this. Others have failed too, some resulting in death. Schools and workplaces will not give the old fashioned style injection leaving patients with their lives in the balance. Since I started this petition hundreds of adrenal patients have died. I now have a pharmaceutical company and a pen developer. We just need the British government to help us make this happen.

This below is the original text.

My little girl who is 14  has been diagnosed with hypopituitarism, thus meaning her pituitary gland is not  working affecting many glands in her body.
The most serious being her adrenal gland, she is now cortisone dependent which means she needs to carry a life saving emergency injection everywhere she goes. Because this condition is quite rare there is not a quick pen injection like the epi pen or diabetes pen. This means that in a time of crisis a small glass bottle containing cortisone is snapped opened a syringe is drawn up with the medication, a sterile needle is taken out of the packet and then attached to the said syringe. This is then injected intramuscular in to the leg.
I am very sure that my little girl in a close to unconscious state would not even be able to take the top off the little glass tube let alone draw it in to a syringe and then inject it in to herself but this is  what she would HAVE to do to save her own life if she were alone. I'm terrified to let her out of my sight. Even I worry that in this situation as a parent I would not be able to calmly do this. I know many other mothers and sufferers also feel this way, it seems that it is not viable  because there are very few people with this condition which gives the impression that their lives are not as important as those who suffer with diabetes or fatal allergy sufferers. 
Ultimately I would like my little girl to finally have a normal life, she has suffered with very poor health for the past 14 years, she has gone through so much and come through so much I think now she deserves the right to a more  healthy life with the safe knowledge that no mistakes can be made in saving her life in an emergency situation. 
She needs to fly the nest eventually like her brother and sisters will, she cannot go out in to the big wide world by herself without an easy to use pen, consider if this were yourself or a family member she deserves the right to an independent life.
This injection pen could mean life or death to all of these people.
Please consider listening to my plea,
I will do anything personally in my own power to make it happen, everyone deserves the right to life. All other petitions and campaigns have fallen on deaf ears. So please everyone get behind me and show your support.
Using a 3 three year olds words (her words) 11 years ago whilst suffering double pneumonia in hospital on Christmas Eve.
'Mummy its not fair any more like this' It hasn't been fair since then with her health and this situation is not fair either, her words may be in the right places now but she is still my little girl and i love her so much.
Please listen this time
Yours sincerely
Rachel Pegler.

IMPORTANT INFORMATION FOR NON UK RESIDENCE please sign this one they will all be counted together
For more info on how you can help click here

From Audrey another mum from Northern Ireland who's daughter Victoria suffers from Addisons, we are in this together now all of the way . please sign for her too and many others like her,

' I know some of you have already signed this petition and I'm extremely grateful. If you haven't already signed and shared it will only take 30 seconds of your life to add your name to this petition. Many of you know my daughter was diagnosed with Addison's Disease last year along with a few other illnesses. It is a life long and life threatening condition. She relies on family members to inject her if she goes into Adrenal Crisis, but this isn't a straight forward ready made consists of a syringe, 2 needles and 2 vials...would you be comfortable preparing that and injecting your loved one when they are dying in front of you. I've no doubt it will be extremely hard to keep my emotions at bay and think clearly. Victoria isn't well again, we're waiting on further test results to see what is happening with her body now. Although this petition isn't Victoria's story, this young girl needs the same treatment. Please sign and share this to try and get an epi-pen manufactured for people like Victoria and Molly. Many thanks

How it will be delivered

In person to downing street




2022-08-31 19:40:43 +0100

I'm so sorry to have to share this. Molly unfortunately Died on July the 24th suddenly at home. Thank you for all of your support with this campaign. Alas I could not do enough. I am continuing to pursue this in mollys memory and have been assured that the epipen development is progressing well.
Please keep on sharing as this does make a difference. My beautiful 23 year old molly has gone. She was not looked after properly by the endocrine professionals and sadly I'm one in a long line. My life has been blown in to a million pieces. She was my beautiful baby & I love her so much .

2021-04-16 10:27:16 +0100

20,000 signatures reached

2019-09-15 10:35:17 +0100

Please could everyone copy and paste this open letter and share it on social media we currently have 10,000 shares on all forms of social media.
It would be great to finally get this thing done Thank you for your support
Please share. Or shre directly from the Facebook post.

2019-05-10 09:27:59 +0100

We filmed this at the beginning of the year. Hoping to produce a feature length for current news programme soon

2019-01-22 22:37:09 +0000

10,000 signatures reached

2018-12-17 09:32:24 +0000

Hi Everyone thank you so much for signing my petition, we are still in the process of achieving this goal. (It is taking some time but a lot of effort is being put in by many different people ) We have one more thing to do. Please could everyone email a letter of support to me and reasons we need this pen device, if you are a parent or a patient or a relation to a patient anyone who thinks they can make a difference. I'm putting my case to the final piece of the jigsaw soon, I intend to take all of these letters to a meeting i am hoping for in the new year. Thank you so much for your time. My Email address is [email protected]

2016-09-19 20:45:22 +0100

I can hardly believe this but i have been nominated for an award for being a health activist ! If you have 2 minutes please vote for me thank you so much šŸ˜ƒ

2016-07-25 11:42:45 +0100

2014-10-17 10:26:54 +0100

17 Oct 2014 ā€” Thank you all so much for signing, i have read every reason for signing and want to thank everyone so much for taking the time to do this, it really does mean the whole world to people who have adrenal insufficiency, very good progress is being made with the pharmacutical company we are working with, please keep sharing Thank you so much ... also join us at where i have many awareness posters and other things going on to help raise the importance and standard of care / medications of this disorder for everyone who suffers it Many Thanks Rachel xx

2014-09-02 22:43:19 +0100

5,000 signatures reached

2014-06-01 10:55:11 +0100 we are having worldwide Molly's picnics for Adrenal insufficiency awarenss day this friday june the 6th please join us :0)

2014-05-19 16:02:01 +0100

We now have around 10,000 signatures and things are progressing very well, please join us on the facebook page and join in in the awareness day i have created with the pituitary foundation. Adrenal insufficiency awareness day june the 6th 2014 . The first ever , All information is on this page including an invitation to hold a worldwide 'molly's picnic' on the day, we so far have 33 worldwide events so please join in.

2014-04-09 17:59:25 +0100

Awareness campaign please donate something small for something small to the pituitary foundation

2014-02-05 10:34:02 +0000

GOOD NEWS!! A meeting was held at the beginning of this month with a leading children's health foundation, they are very interested in getting the development of this medication and are meeting with pharmaceutical companies soon. Also i would like to welcome Dr. J.Johnson as part of my team, he is also meeting with the managing director of a pharmaceutical company on the 24th of this month, he is very positive that the auto injector pen can be adapted for this purpose and has estimated that over a million people will benefit from this medication . Thank you all so much for your support and please keep sharing........... fingers crossed we will succeed

2014-01-27 20:52:30 +0000

Campaign website