Help us get treatment for are son in Wales so we can go home

Riley was diagnosed with a rare genetic disorder called hunter syndrome when he was two,it's a proggressive disease with a life expectancy of 12-15years. When he was diagnosed we had an email off Welsh government saying it wasn't cost effective to give him treatment that would give him a better and less painful life. We had to move from Wales to England to get treatment,not only had we just found out are son had a life limiting disease but we would have to leave all are friends, family and are complete support network behind. We struggle on a daily basis were we are now with no support, we just want to go back home to be with family and have more of a support network for the boys. Please sign and share hopefully someone will listen