100 signatures reached
To: The ME Association
ME Association to leave the CMRC
The ME Patient community respectfully asks the ME Association to leave the CMRC
Why is this important?
This is to show that the ME Association should best use its resources on biomedical research already happening in the UK and indicate that the CMRC (CFS/ME Research Collaborative) is not fit for purpose.
The collaborative is run and consists of people who consider the PACE trial a good piece of science. The initial aim for the collaborative is to raise a huge amount of money for a biobank when the ME Association is already involved with one which could be improved upon instead. The collaborative has a poor grasp of the definition of Myalgic Encephalomyelitis and the need and urgency of those on the severe end of the spectrum.
The ME Association in leaving the CMRC will help the political situation ME patients find themselves in by opposing those who defend poor science not collaborating with them and thereby indirectly giving them credence. Other authorities and the government will then see clearly where the ME Association stands (and therefore patients) with regards to the biopsychosocial model of ME.