Petition is successful with 8,235 signatures
To: Jeremy Hunt, Secretary of State for Health
NHS England's scorecard Denies Access to Treatment for Ultra Rare Diseases
19/12/2014: Following the threat of a legal challenge by a 10 year old boy with Morquio, NHS England have announced that they are abandoning the scorecard and are going back to the drawing-board on their approval process. We are really pleased that the petition and threat of legal action has forced NHS England to develop a fair decision making process for ultra-rare diseases - thank you to everyone who signed.