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To: NHS health professionals

Recognition of Pathological Demand Avoidance by health professionals

Recognition of Pathological Demand Avoidance by health professionals

I would like health care professionals and C.A.H.M.S to commission P.D.A (Pathological Demand Avoidance) National Autistic Society acknowledge this as part of being on the autistic spectrum but it also very complex. Please see below to sign the government petition for health care professionals to recognise and understand PDA

Why is this important?

The government acknowledges PDA within autism spectrum. PDA was looked at during NICE Guidance Development (https://petition.parliament.uk/petitions/202680)

Although there is some good practice within services who identify the profile, this is still not common place.

We need all NHS services working with ASD to recognise the profile so that adapted autism strategies can be used.

Also to avoid misconceptions and misdiagnosis being caused in these individuals.

Why this is important

Although there is some good practice within services who identify the profile, this is still not common place.

We need all NHS services working with ASD to recognise the profile so that adapted autism strategies can be used.

Also to avoid misconceptions and misdiagnosis being caused in these individuals.

Also so that individual needs can be clearly identified to support the implementation of SEN Codes of practice when identifying and providing for individual education and health care needs.

What's actually happening on the ground across the UK!

The Government identifies PDA as part of the autism spectrum.

Parents of autistic children are receiving misinformation when seeking advice from NHS, they are being told PDA does not exist.

Individuals are Struggling to obtain autism assessment for their children.

THEY ARE Having to defend their parenting.

Their children being misdiagnosed with MENTAL HEALTH conditions rather than autism

How it will be delivered

Demonstration London UK

Tuesday 15th May 2018 @ 1230


Reasons for signing

  • I have a son with pda now 22 and has been sent to prison locked up now in psychiatric unit. Dispite his well being now they fail to release him. Fail to recognise pda. This is absolutely heartbreaking as a mother. All professionals dealing with autism should be trained on pda.STOP THIS NOW RECOGNISE PDA. Before another parent goes through the heartbreak I have been and going through
  • Struggled for years to get people to listen stil waiting for assessment despite being referred in 2016, no tangible help whilst waiting, just negativity. We want the professionals CAMHS, teachers, etc. to have the knowledge to be helpful not judgemental. The complete lack of help has lead to a negative impact on a whole family, it shouldn't be this way; surely it makes more sense to treat one child than the mental health needs of a whole family crushed by dealing with issues alone.
  • Please share as far and wide, unless we increase the pressure, they the government the and nhs will just sit back!

Updates

2018-03-17 08:05:56 +0000

So the government are moving forward regarding recognition & awareness, let's step this up & get this signed to get "camhs commissioned to assess for PDA",

https://t.co/jfoMVvq3hJ via @38_degrees

Please share as far and wide, unless we increase the pressure, they the government the and nhs will just sit back!

2018-03-09 20:00:56 +0000

https://l.facebook.com/l.php?u=https%3A%2F%2Fpetition.parliament.uk%2Fpetitions%2F202680&h=ATOB8RKiuoTLPEHN7TWmCj2OcJFHYVmMs2drl72ArxbLFMdebCrZ4SypeEXHTLso1pXqfNkE3an9wnp05x8Nv72IR8XM9gXLjCF6Nwmot9nF6Wg&s=1

2017-10-08 10:39:54 +0100

500 signatures reached

2017-10-02 19:48:22 +0100

100 signatures reached

2017-10-02 14:06:43 +0100

50 signatures reached

2017-10-02 12:01:24 +0100

25 signatures reached

2017-10-02 11:25:38 +0100

10 signatures reached