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To: Rt Hon Chloe Smith MP Secretary of State for Work and Pensions

No more PIP reassessments for people with Lifelong Disabilities & Terminal Illness

When a disabled person has a lifelong disability, or condition that will not change or diminish, they should not have to go through Light Touch Reviews at 10 years. If someone cannot self-advocate, they can be taken advantage of and can be manipulated. Medical Consultants give enough evidence through their reports that 10 year Light Touch Reviews are un-necessary. Our daughter Holly is Certified Sight Impaired, On the DeafBlind Register, cannot use phones or fill in forms, yet we are still being told she will need a Light Touch Review at the 10-year mark, HOW? Terminally ill people need to be fast tracked & the current system is too slow, people are dying before they are in receipt of benefits!

Why is this important?

Young people and Adults with special educational needs and a lifelong disability cannot self-advocate, nor can we rely upon the system to protect them. Advocates and social workers come & go, we need to address the shortage of social workers in the SEND system. These genuinely disabled and terminally ill people are not
work shy, they are being told that despite evidence to the contrary they must work, or that they don't qualify. They cannot defend themselves and quite frankly, our government should be doing its level best to protect them, instead poorly qualified assessors employed by US companies, who’s aims are profit driven are in charge of assessment. Assuming everyone is a criminal & treating genuinely disabled & terminally ill people like this is unacceptable! Terminally ill people need to be fast tracked as soon as they are diagnosed!

Category

Updates

2019-10-17 12:43:34 +0100

Hello everyone the trolling appears to have ceased, (cross fingers) we are pushing on with the petition in the hope of upping the numbers and handing in very soon. Thank you for your patience and support everyone. MB.

2019-08-22 17:20:31 +0100

Hello everyone, I've been trolled and harrassed by a particularly persistent person who infiltrated our group on facebook, she had multiple accounts and has made libelous statements about the group and myself personally, the group is strong, it will survive. 38 degrees have turned off comments. Thank you 38 degrees <3 Facebook has blocked this person too, I am now contacting the police to allow them to deal with this person. Thank you for your understanding. MB

2019-08-21 18:04:26 +0100

150,000 signatures reached

2019-08-03 19:20:45 +0100

Sharing, this is what a PIP Assessment reduces you to and why they are anything but honest!

Abosolutly disgusted, despite having loads of medical evidence, support from a professional and all of the aids I have I have received a copy of my report (before decision has been made) and the assessor has lied and scored me 0 😡 assessor said I was hugging my knees to my chest which shows good grip, I can’t get my knees to my chest, I’m 17st fgs 😡 and because I drive my automatic car once a week I have good grip and can cut my own food up and safely cook a meal o and because I own a mobile phone even if I do not use it often this shows good dexterity and grip 😡 she even said that because the physio gave me crutches it shows I have good grip and because I changed the crutches for smart crutches that puts all weight on my forearm rather than wrists and shoulders I have good grip 😡 lying and piss taking assholes 😡

2019-07-21 15:51:56 +0100

I set out with all good intentions to post every single day, then things crop up with our daughter and my parents, lack of care, improper care, you name it, Thank you everyone, for sticking with us, this is so important. Biggest hugs Maia (Mand) whichever you prefer.

2019-07-13 21:58:47 +0100

Brexit is not about sovereignty, it’s not about us being better than anyone else, nor is it about rebuilding the country, it’s about an elite group of people who think that they are better than everyone else, not only do they have enough money to ride out Brexit to the point that it will not affect them, but they will drop our country from a very great height into a bottomless pit without exception we will undoubtably suffer, whilst these Neanderthals enjoy the full Brexit experience, the joys of NOT paying any taxes when the rest of the country are crushed by them, the only thing to stop this idiocy is staying in the EU.

2019-07-13 21:58:17 +0100

No one should have to be made to feel less than another person, no one who is genuinely ill or disabled should have to go through the quagmire that is PIP assessments. There is no excuse for the lackadaisical approach that DWP and associated PRIVATE for PROFIT companies call ‘assessments’ in fact, I’d go as far as saying it is an absolute travesty, the Human Rights of all disabled people in the UK swing in the balance,

2019-07-13 21:32:26 +0100

Hi everyone, our life has been turned upside down, life in general is hard, I think I’ve already said that my father, was Mum’s carer (Mum has Alzheimer’s) until December 2017 when Dad was diagnosed with Global Heart Failure and given one year to live. We’re incredibly lucky, he’s still here, but very poorly, Mum and Dad both have dire care, in fact the word care shouldn’t be used in the same sentence, so, this week, I found out that the care being given to my parents (who live at the other end of the country) is less than dire. Formal complaints in the offing. This week, we also had to complete an Education Health and Care Plan, attend an awards ceremony at HJ’s college, everything she was nominated for, she won :-) fabulous.

Lots of work in the offing, regarding the sheer mess that surrounds adult care for my parents and our daughter, as well as advocating for PIP too.

2019-06-18 19:50:18 +0100

Hi everyone, we're at 131,489 Signatures now, whoop whoop, unfortunately 3 weeks turned into nearly 10 weeks, but feeling much better now, Just wanted to say a huge thank you to everyone who's shared, signed etc. we've gone up by a whole 15K signatures in the last week!

2019-05-12 13:00:39 +0100

Hi everyone, quick update, I had a small op about 3 weeks ago, the op itself went fine, had a myxoid cyst removed, benign which was good news, unfortunately due to the way I lay after the op (I had to elevate my hand for 48 hours) I've done something to hurt my back, I already experience severe pain daily, but this was off the scale, ended up in A & E last weekend but just wanted you guys to know I've been out of action for about 3 weeks, unable to do anything at all, hubby already helps me with everything, does the cooking etc. but having the pain step up was so much worse. So, getting better, still not back to 'my' normal yet though, so please do not be offended if I don't reply, it's not you! I've missed out on so much, not being able to visit my terminally Dad and my Mum, who has Alzheimer's. having to cancel the visit. Practically Holly's whole 18th birthday :-( that really saddened me. Onwards and upwards guys.

2019-04-28 22:03:21 +0100

100,000 signatures reached

2019-04-26 22:48:39 +0100

P.S. How inspired and amazed were you by Laura Pidcock MP? I certainly was, we need more Laura’s that’s for sure and she’s a Durham lass! Well, she’s a Durham NW MP lol, which technically makes her a Durham lass, from one Durham lass to another (I know technically she isn’t) You rock!

2019-04-26 22:46:00 +0100

Tonight, I’m doing something really novel, I’m hoping that pain doesn’t waken me and the rest of our house in the middle of the night, as it has for the last few weeks every single night, so I’m updating now in the hope that I’m not awake at 3am again, wish me luck lol :-) Love you guys as I do, I need sleep more haha. 91,565 bite me :-) lol. How amazing are you guys?? Totes amaze balls Thank you, thank you, thank you! You know what to do!

2019-04-26 03:24:00 +0100

I've just realised that I explained about the op, but not the pain. I'm not sure why I'm in pain, I need to see a doctor, asap. I've been unable to travel though, two days after my op my back started to hurt and it's a doozie. Getting progressively worse each day. So, bear with me guys, I think lack of sleep and the pain is making my brain foggy.

2019-04-26 03:21:25 +0100

I now realise how much pain I've been in over the last few weeks, I haven't updated you guys, I'm so sorry, I had a routine op on my finger a few weeks ago, something called a myxoid cyst removed. It has been very painful, took three whole years to see a rheumatologist, who also diagnosed me with Osteoarthritis and Fibromyalgia at the same time. It hurts to sit, lie, stand and I'm taking painkillers, but they're doing little to help, so, apologies everyone, I thought I'd updated this just last night and obviously didn't. I was very impressed by Laura Pidcock's speech regarding assessments, more so perhaps because I'm ever so slightly biased, living in Devon, but my home city being Durham. Keep it up everyone, we're growing in numbers, nearly 2.5K members in our facebook group now and so near the end. Keep signing and sharing with everyone, on facebook, twitter, email, in your groups. Hugs everyone. MB xx