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To: Rt Hon Chloe Smith MP Secretary of State for Work and Pensions

No more PIP reassessments for people with Lifelong Disabilities & Terminal Illness

When a disabled person has a lifelong disability, or condition that will not change or diminish, they should not have to go through Light Touch Reviews at 10 years. If someone cannot self-advocate, they can be taken advantage of and can be manipulated. Medical Consultants give enough evidence through their reports that 10 year Light Touch Reviews are un-necessary. Our daughter Holly is Certified Sight Impaired, On the DeafBlind Register, cannot use phones or fill in forms, yet we are still being told she will need a Light Touch Review at the 10-year mark, HOW? Terminally ill people need to be fast tracked & the current system is too slow, people are dying before they are in receipt of benefits!

Why is this important?

Young people and Adults with special educational needs and a lifelong disability cannot self-advocate, nor can we rely upon the system to protect them. Advocates and social workers come & go, we need to address the shortage of social workers in the SEND system. These genuinely disabled and terminally ill people are not
work shy, they are being told that despite evidence to the contrary they must work, or that they don't qualify. They cannot defend themselves and quite frankly, our government should be doing its level best to protect them, instead poorly qualified assessors employed by US companies, who’s aims are profit driven are in charge of assessment. Assuming everyone is a criminal & treating genuinely disabled & terminally ill people like this is unacceptable! Terminally ill people need to be fast tracked as soon as they are diagnosed!

Category

Updates

2019-04-04 20:58:30 +0100

We cannot allow a government who are oblivious to what is happening (because they don't so much as scratch the surface) to continue treating people so abhorrently, people who are lifelong disabled should not need to be reassessed! EVER.

2019-04-02 08:56:23 +0100

Hi guys, I've been dealing with a lot at home recently, both of my parents are very poorly, I'm fighting our local authority to make sure that our daughter transitions to adult services properly, there seem to be no end of meetings, no end of paperwork etc. you name it, I just wanted to say a huge thank you to everyone who has signed or shared our petition. We are now at 86,512 Signatures and we are eternally grateful.

2019-03-16 14:19:03 +0000

83,631 Signatures, whoop whoop, just wanted to say a HUGE thank you, the sheer volume of paperwork generated by a young disabled person is mind-blowing, you would think that you'd only have to make sure one person has 'all' the information, but you don't because they are forever losing it, or just not bothering to access it, or alternatively their system can't access it etc. Thank you, everyone, keep sharing and signing, we are getting there :-) <3 <3 <3

2019-03-12 23:16:44 +0000

82,537 Signatures Guys, you amaze and astound me. I am in awe. Thank you, we are not just doing this for our own daughter, we're doing it for everyone, someone must care, someone MUST take responsibility for the shambles that claims to be our country at the moment. They've had 10 years to sort it and all it's done is make 'them' richer. who suffers? The lifelong disabled, the ill, the elderly and the infirm. Not good enough. #StopReassessmentOfLifelongDisabled.

2019-03-12 13:41:53 +0000

Hi everyone, my humble apologies, I've been collecting signatures and been literally snowed under with paperwork for our daughter from our local authority. I will keep abreast of this from now on, you may even see my hubby, Andy too :-) lol. Keep sharing, signing, retweeting. We're over 82K now!!!

2019-03-05 15:32:27 +0000

Hi everyone, I'm not sure how we're supposed to react to Amber Rudd, I honestly think that she knows there are hundreds of thousands of people out there who have life long disabilities and should never again need to be reassessed. Single out a portion of those people, those over 66 quite frankly beggars belief. It's good that those over 66 no longer have to be reassessed, but what about all those disabled and chronically ill people UNDER 66?? Share, sign, tweet, and share again guys. Let's show our government what hypocrites they really are. Show their discrimination too. TY Maia.

2019-03-03 15:52:01 +0000

Hi guys, looking at the group with renewed energy, we are at 79,007 Yessssss that's right, 007 haha <3

2019-03-01 20:56:45 +0000

Hello again guys, spent the day firefighting for our daughter again, lots of paperwork and endless reading. 78,366 Signatures :-) Absolutely awesome. Thank you. Keep sharing and signing :-)

2019-02-28 17:09:41 +0000

Hi guys, apologies for the lack of updates, we've had a few 'really' bad days, it's been a struggle as HJ is transferring from Children's to Adult's Services and everything that could, did go wrong. We have a wonderful lady who is liaising for us with our local authority now though and things are looking brighter, we have a flan thanks to this lady. Phew, sometimes guys, it just gets overwhelming, especially when you're planning the future of a young person and you don't know if you're going to be there to support them/for how long etc. Thank you guys, our new twitter is #StopReassessmentOfLifelongDisabled it will take you to our new twitter group, join us, make a noise, share, retweet etc. SIGN.

2019-02-24 23:37:13 +0000

76,773 Signatures guys, awe-inspiring, on our way to 77K, Apologies for what might seem lack of info at the moment, or gaps guys, we're dealing with a whole lot at home right now, fighting to make sure that our daughter is protected now and in the future. Thank you for your understanding, Normality will resume soon hopefully.

2019-02-22 20:32:53 +0000

75,402 Signatures, on our way to 100K guys, Thank you so much, please keep sharing and signing. not long until we break into 80K guys, please remember you can sign the petition, share it with your friends, family, in groups via Facebook and Twitter as well as email your contacts, also, we have our own group on Facebook now too - Thank you everyone and finally, you can send the petition to your MP too. MB :-)

2019-02-21 03:54:12 +0000

74,829, you've got twofa, two posts for one :-) As my lovely arthritic hip woke me and the pain won't quit, I thought I'd post and tell you guys just how awesome you are ALL of you and how thankful we (the Bell clan) are as a family to every single one of you. Keep at it guys, keep sharing, posting, signing, retweeting. EVERYBODY's AWESOME! (Cue Minions) hehe. sorry, couldn't resist.

2019-02-20 17:42:06 +0000

Hi everyone, 74,552 Signatures and a Facebook group with over 2,000 all hoping for the same outcome. Apologies for not updating the page, the last few days have hectic in the extreme, Holly is moving from Children's Services to Adult Services (which you do when you approach 18) Unfortunately as with everything else, it's a mess, hence my being unable to update the Petition. Thank you everyone, keep sharing and retweeting, signing etc. We are getting there!

2019-02-18 19:40:29 +0000

72,680 Signatures Guys! We will soon be at 73K, apologies for not posting yesterday, I have osteoarthritis in my hands and Fibromyalgia, my hands decided they’d had enough and no amount of painkillers made any difference. I just wanted to say a huge thank you and to ask everyone to keep sharing on Facebook, Twitter etc.

2019-02-16 23:48:09 +0000

70,353 Signatures! Totally awestruck by you guys and your generosity! A thousand thank you’s! Please keep signing and sharing guys and don’t forget to share our Facebook group information too please.
https://www.facebook.com/groups/2357083207689767/members/