We need Jeremy Hunt MP to get NHS England to fund Vimizin for Morquio sufferers

It gives Morquio sufferers a better quality of life and prolongs their lives. It is vital.
Our 6 year old son Harvey suffers from Morquio and as desperate parents along with all other Morquio sufferers, we really need this drug funded. NHS England could not come to a decision about funding and passed the buck to NICE.