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To: Rt Hon Chloe Smith MP Secretary of State for Work and Pensions

No more PIP reassessments for people with Lifelong Disabilities & Terminal Illness

When a disabled person has a lifelong disability, or condition that will not change or diminish, they should not have to go through Light Touch Reviews at 10 years. If someone cannot self-advocate, they can be taken advantage of and can be manipulated. Medical Consultants give enough evidence through their reports that 10 year Light Touch Reviews are un-necessary. Our daughter Holly is Certified Sight Impaired, On the DeafBlind Register, cannot use phones or fill in forms, yet we are still being told she will need a Light Touch Review at the 10-year mark, HOW? Terminally ill people need to be fast tracked & the current system is too slow, people are dying before they are in receipt of benefits!

Why is this important?

Young people and Adults with special educational needs and a lifelong disability cannot self-advocate, nor can we rely upon the system to protect them. Advocates and social workers come & go, we need to address the shortage of social workers in the SEND system. These genuinely disabled and terminally ill people are not
work shy, they are being told that despite evidence to the contrary they must work, or that they don't qualify. They cannot defend themselves and quite frankly, our government should be doing its level best to protect them, instead poorly qualified assessors employed by US companies, who’s aims are profit driven are in charge of assessment. Assuming everyone is a criminal & treating genuinely disabled & terminally ill people like this is unacceptable! Terminally ill people need to be fast tracked as soon as they are diagnosed!

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Updates

2022-01-28 11:56:04 +0000

Hi guys, getting ready to hand in our petition. Last-ditch effort today ONLY to get this petition up to 300K then that's it, it's vital that we get as many signatures as possible, even at this late stage to send a message to our PM and his Government that children, young people, and adults with lifelong disabilities, longterm illnesses and the terminally ill NEED THEIR SUPPORT.

2021-12-07 11:27:04 +0000

Getting exasperated with the powers that be!

2021-11-18 16:54:14 +0000

We're over the 253K everyone! Whoop whoop.

2021-11-14 16:01:01 +0000

Only 54 more signatures to 253K guys, share the living daylights out of this. Thank you MB

2021-11-13 16:35:35 +0000

The numbers are continuing to increase. Whilst there is breath in my body I will not give up. It’s crazy reassessing people unnecessarily! People who are lifelong disabled will not suddenly MEND, terminally ill people will not suddenly become well overnight either, #NoMorePIPReassessmentsForPeopleWithLifelongDisabilityOrConditions It is costing taxpayers HUNDREDS OF MILLIONS to reassess people unnecessarily

2021-11-12 13:37:39 +0000

Today I spoke to Francesca from Selaine Saxby's office, we now have over 252K signatures, more than enough to debate about this in the House of Commons. Wish us luck everyone.

2021-10-10 15:27:02 +0100

We are pushing on with our Petition. We may end up with 300K signatures by the time it is handed in, but it will have an impact. No one with lifelong disabilities or conditions should have to be reassessed over and over. You do not suddenly become able bodied when you are born with a disability and for people with lifelong disabilities a 10 year Light Touch Award is not helping, it’s merely putting off the inevitable and opening up disabled people to the discrimination of assessors who are not qualified to assess. We have personal experience of this ourselves.

2021-10-10 15:19:31 +0100

Oh my goodness, so much has happened in the last year, we’ve been ill, we’ve been to hospital, we’ve had falls down stairs and we lost my wonderful Father-in-Law. Things have fallen by the wayside, I have asked several MP’s if they could help us & been turned down by them all, or had no response whatsoever. We need someone to hand in our petition as my wonderful hubby cannot help both myself & our daughter at the same time and London is a hard place for someone who is sight & hearing impaired to be. We hope you haven’t lost someone precious to you and that you didn’t lose your PIP through no fault of your own. MB

2020-02-26 19:46:12 +0000

200,000 signatures reached

2019-12-28 19:44:40 +0000

Jemma's story
https://www.facebook.com/groups/2357083207689767/permalink/2944927125572036/

2019-12-28 19:40:50 +0000

This is Frank's story.
https://m.facebook.com/groups/2357083207689767?view=permalink&id=2952930508105031

2019-12-22 02:59:52 +0000

Where to start, I literally do not know, I had hoped that our current government with their discrimination, demonisation and persecution of disabled people would have long gone by now, sadly it is not the case and with each passing day we seem to have more to worry about. Scrutiny is not something our govt are used to. Keep sharing everyone.

2019-11-07 00:12:14 +0000

When genuinely ill and disabled people attend for assessment, are sent home and told they're fit enough for work, they then pass away the following week, or whole families are committing suicide, there's something VERY wrong. we are trying to redress the balance. Ken Loache recently mentioned that a man had been seriously injured and wouldn't get in an ambulance because he had an appointment for work the next day,

2019-11-07 00:11:08 +0000

In for a penny, in for a pound, I'm just wondering if the new Secretary of State for Work and Pensions (Therese Coffey MP) is aware of just how bad a job her government is doing with PIP, or whether she thinks it's ticking over nicely, oftentimes, unless someone is confronted with something, they have no idea about it. In all honesty, I wasn't convinced that either Esther McVey MP or Amber Rudd MP gave a fig what was happening, how and why people were suffering because of the way PIP assessments were now carried out in England and I do say 'England' specifically, because Scotland have reverted back to the old system of in house Assessors, instead of the private for profit American based companies that we're coming across now, ATOS/IAS/CAPITA/MAXIMA etc. the very fact that they're profit driven means that 'we' get a bad deal. Enough said,

2019-11-06 23:54:22 +0000

Hello everyone, wow, it's been a while, time flies, I wish I could say it was because I was having fun, unfortunately it wasn't, as many of you are aware, both of my parents are terminally ill, Dad has end stage global heart failure and Mum has Alzheimer's. I've been attempting to secure Lasting Powers of Attorney to protect my parents, primarily because everything that could go wrong has, suffice to say that I'm back to square one, no protection for my parents, care in name only, the carers do turn up, but instead of staying the 2+ hours they're meant to per day, they probably stay for approx 15 minutes max! Stressed is not the word, so, apologies for my not being here, we are at 175,285 Signatures! Whoop! You guys are totally amazing. Thank you! <3