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To: NHS Coastal West Sussex Clinical Commissioning Group
Fund care for Tom
Please continue to fund Tom's continuing healthcare needs
Why is this important?
My son Tom is a 28 year old young man with an acquired brain injury. The injury occurred in 2007 as the result of an infection just 4 days after his 18th birthday. He was doing well in his A levels, and then this awful tragedy happened. For the past nine years, he has been supported for care and accommodation by Continuing Healthcare (CHC) funding. Tom's condition means that he needs 2-1 care during daytime. Although his needs have become greater in that time -- his epileptic seizures are more pronounced and frequent -- his funding has suddenly been withdrawn.
Tom is very much at risk of harm without this care: he cannot look after himself, and his behaviour is often challenging and unpredictable. A hurried and insufficiently attentive review has judged him ineligible for healthcare funding, because although his needs are 'High', they are not deemed 'Severe' -- even though his 'Behaviour' and 'Cognition' clearly meet the panel's own 'Severe' CHC criteria. None of Tom's carers or family agree with this decision but our responses and appeals have been ignored.
Please help by urging NHS Coastal West Sussex Clinical Commissioning Group to change their decision and continue to fund Tom, as they have been doing for the last nine years. Tom is so vulnerable and really needs your support.