The Ultra Rare Disease Foundation wants the Northern Ireland Health Minister to reassess the Rare Disease Plan and Include children and adults who have Ultra Rare Diseases and ring fence their health care for life and also ring fence the cost of their drugs, orphan drugs are very expensive and research in Northern Ireland is very limited, we want the Northern Ireland Assembly to announce that the Belfast City Hospital becomes a Centre of excellence in the fight against Ultra Rare Diseases and Rare Diseases The Northern Ireland Plan does not include counselling services for siblings of patients with ultra rare diseases as young siblings have to deal with problems they may meet in schools from other children who don't understand what a ultra rare disease is, the plan also needs to ring fence care for a child who has a ultra rare disease as this takes 24 hour round the clock care for children and that care is down to the parents, we want it ring fenced for their health care which should be for the life of the child or adult. The plan also needs to ring fence children who have no diagnosis for sometimes up to eight years. We want their families to have the same support as a child with an Ultra Rare Disease .

Our Campaign is needed to put right a wrong that Rare Diseases are the same as Ultra Rare Diseases if you have a child with an Ultra Rare Disease it mean the child will not have the same conditions it will be harder for them to get orphan drugs because they are more expensive they need more health care they will have to spend longer terms in hospital and they wont always have a diagnosis children are waiting up to 8 years before they get a diagnosis and a plan has to include life time ring fenced health care ,housing needs, and round the clock health care support for families,

Becasue she is a dangerous and poisonous human being who goes against the basic values that this country should actually stand for in the world. Also because Donald Trump seems to think she is a respected journalist who speaks the truth and believes her outrageously divisive opinions "which she has to a deadline each week" (Charlie Brooker, Weekly Wipe, BBC2, 2015) are reasonable and make sense.

The inhumane suffering and wilful torture of living creatures due to unmonitored mass-slaughter is a major negligence by EU and UK Govt. The involvement of the RSPCA and similar ethical EU agencies is paramount. The current behaviour (often secretly filmed) shows vicious attitudes in many of the ill-educated slaughterhouse staff toward sentient animals. This is totally UNACCEPTABLE!

In making these industries exempt, the funding has to come from elsewhere. The Conservative government has made it clear that it will not finance renewable energy off its own back, so funding will instead be passed on to regular households. The Government proposes to withdraw support for short-term funding (the next 4-5 years) of renewable technologies like solar panels and wind turbines as they are concerned it will add £ 7 p.a. to consumers energy bills which is unacceptable. Households will see their bills increase by £5 a year for the next four years to fund this exemption, at a total cost of £20 added to household bills. What has also been revealed is that projected savings from “reforming” (closing) the renewable obligation and feed-in tariff (renewable energy support schemes) will save households a total of £17 over the same period. Clearly, this action does not fit with the Governments intention to save consumers money on their energy bills as this action actually increases consumer energy bills. Renewable energy industries benefit communities, reduce wholesale future electrical energy costs and reduce pollution, making the environment a better place for current and future generations. Money used to support these schemes will now be passed as "Levy Control Framework Exemptions" (tax breaks) to high energy busines users - who pollute the planet and cause pollution related illnesses. The European Commission has aggregated a list of industries it considers intensive users of energy. That list, includes but is not limited to industries such as the mining of hard coal and the manufacture of refined petroleum products. On the face of it, it looks as if savings made from the feed-in tariff are being handed straight to large energy users to make sure they can survive the kind of difficult business environment the government is creating for domestic solar. It’s a galling prospect, and one that flies completely against any ‘the polluter pays’ principle put across in environmental law. “Treat the earth well: it was not given to you by your parents, it was loaned to you by your children” Please sign this petition to let George Osborne know we want a clean environment for our children and not to give money used to support clean energy industries away to support polluting fossil fuel companies. More details on the link below, but please read the quote below the link from Carl Sagan - a famous astronomer who was moved to write about the last image of our planet, taken as a Voyager satelite left our galaxy : http://www.solarpowerportal.co.uk/editors_blog/fit_cut_savings_all_but_handed_to_potential_polluters_under_eii_2592 “From this distant vantage point, the Earth might not seem of particular interest. But for us, it's different. Consider again that dot. That's here, that's home, that's us. On it everyone you love, everyone you know, everyone you ever heard of, every human being who ever was, lived out their lives. The aggregate of our joy and suffering, thousands of confident religions, ideologies, and economic doctrines, every hunter and forager, every hero and coward, every creator and destroyer of civilization, every king and peasant, every young couple in love, every mother and father, hopeful child, inventor and explorer, every teacher of morals, every corrupt politician, every "superstar," every "supreme leader," every saint and sinner in the history of our species lived there – on a mote of dust suspended in a sunbeam. The Earth is a very small stage in a vast cosmic arena. Think of the rivers of blood spilled by all those generals and emperors so that, in glory and triumph, they could become the momentary masters of a fraction of a dot. Think of the endless cruelties visited by the inhabitants of one corner of this pixel on the scarcely distinguishable inhabitants of some other corner, how frequent their misunderstandings, how eager they are to kill one another, how fervent their hatreds. Our posturings, our imagined self-importance, the delusion that we have some privileged position in the Universe, are challenged by this point of pale light. Our planet is a lonely speck in the great enveloping cosmic dark. In our obscurity, in all this vastness, there is no hint that help will come from elsewhere to save us from ourselves. The Earth is the only world known so far to harbor life. There is nowhere else, at least in the near future, to which our species could migrate. Visit, yes. Settle, not yet. Like it or not, for the moment the Earth is where we make our stand. It has been said that astronomy is a humbling and character-building experience. There is perhaps no better demonstration of the folly of human conceits than this distant image of our tiny world. To me, it underscores our responsibility to deal more kindly with one another, and to preserve and cherish the pale blue dot, the only home we've ever known.” ― Carl Sagan, Pale Blue Dot:

Whilst it’s great to live in such a beautiful part of the region, rural areas get a rough deal when it comes to services. I want to see the Doctors Surgery in Luddenden maintained to ensure those who depend on these services can continue to live in our area.

Because your first one is awesome, and you need to write more.

24 builders who fought for better, safer working conditions by coordinating successful strike action were later convicted on trumped up charges of violent picketing and intimidating workers. There is strong evidence of interference from the government of the time. The truth needs to be told on behalf of the men wrongly convicted who are still living including Ricky Tomlinson. The government needs to stop hiding behind national security as a reason for withholding these papers. What possible issues of national security could there be from an event that occurred over 40 years ago. We all need to help them fight for justice.

The west is trying to impose democracy on the world. Democracy is reputed to involve free speech and open debate. Donald Trump is being condemned by David Cameron. As a democrat David Cameron should welcome debate, and Donald Trump. Unless .....

Bees are dying. This is having great affect on our environment if action is not taken quickly the damage won't be repairable. Bees provide us with food in the form of honey, pollination and they also produce many other natural products which we benefit from.

The current monetary system, now world-wide, grew from history, the interactions of people, companies and nation states. It contains an unsustainable effect, a flaw, as money needed for circulation is created as debt to be repaid with interest. Thus there is a charge against future production, requiring continued increase in production, and somewhere bankruptcy and/or exploitation occurs, such the cycles of boom and bust and rampant inequality that have been shown to be ever more severe. This system is not only unsustainable, it is destructive. Monetary system reform seeks specifically to consider the way that money is created, who creates it and how it gets into the economy. There are viable alternative systems* that would democratise money and enable a more optimally functioning economy, responsive to productivity and need. Economists, and banks, including the Bank of England, recognize that “money” is not a thing in itself, it is a symbol of an agreed value for goods, services, work performed, things needed or wanted. Most economic theories are about “what money does”, how it can be used and transferred, how quickly does it circulate, what kinds of uses and modes of transfer will produce what results for investment and returns in the future, and for which sectors of society. Economists, knowing that money is a symbol, seldom address “What money is?” nor “Where does it come from?” nor “How is it created?” These unaddressed questions lie within a social and economic history that have produced the Monetary System, within which economics is applied. As these decisions are at present taken by banks, it is the banking corporations that direct significant distributional socioeconomic effects, mortgage lending being favoured over small business loans being one of the most obvious. We might say: we can’t eat bricks, but a bank loan does not make judgments of social value. It is therefore right and just that banks should be subject to democratic scrutiny, just as any corporation is subject. Banks are private and unelected corporate entities, offering to society a money management service. When this service is seen as different from “money creation”, perception of the system as a whole can change. Banks are corporations who have been given this privilege, and part of the privilege is that over time the repayment of interest brings money out of the productive economy and into the wealth of the bank. It also ensures that debt is always greater than the money supply, and further, that debt will increase faster than the money supply. The economy in each nation state, and indeed the world economy, affecting the lives of everyone on it and even the nature of the planet itself, can run on a reformed system. For all our goods and services, we could create a “Monetary System” that is sustainable and fit for purpose, first within our own nation, then by interactive co-operation we would affect others. “Once a nation parts with control of its currency and credit, it matters not who makes that nation’s laws, Usury, once in control, will wreck any nation. Until the control of the issue of currency and credit is restored to government and recognized as its most conspicuous and sacred responsibility, all talk of the sovereignty of Parliament and of democracy is idle and futile.” – William Lyon Mackenzie King, prime minister of Canada, August 2, 1935 (quote courtesy of Canadian Monetary Reform News) This petition asks that an enquiry into the monetary system and alternatives to it be set up, in order to create an Equitable Monetary System in which money creation is democratised. A ‘wealth’ of further information from: • http://positivemoney.org/ • http://www.neweconomics.org • http://www.bankofengland.co.uk/publications/Documents/quarterlybulletin/2014/qb14q101.pdf

James Clerk Maxwell stands beside Einstein and Newton in the trinity of physicists who explained how the universe works. The other two are global superstars, but Maxwell is barely known in his own country, Scotland. To celebrate a great man and encourage future generations to take risks and think big, Maxwell should be the face on the next RBS banknote. The greatest Scotsman to ever live deserves to be a household name.