People born with 22q can have upto 180 medical issues. There are only very few 22q clinics that are for children in the UK. DiGeorge Syndrome is either having part missing chromosome 22q or having duplicated chromosome 22q. Within these clinics you get seen under Cardiology, Immunology, Psychology, Peadiatrics 22q specialists and referrals are made to multiple clinics there after if needed. Everyone with DiGeorge syndrome is affected differently and it's difficult to predict how severe the condition will be. Most children survive into adulthood. As someone with DiGeorge syndrome gets older, some symptoms such as heart and speech problems tend to become less of an issue, but behavioural, learning and mental health problems can continue to affect daily life. Many of those who reach adulthood will have a relatively normal life span, but ongoing health problems can sometimes mean life expectancy is a bit lower than normal. It's important to attend regular check-ups so that any problems can be spotted and treated early on. Having a 22q clinic for adults means they would be receiving lifelong checks and it could help improve health and have longer life expectancies. Just because turning the age of 18 doesn’t take away DiGeorge Syndrome or it’s health effects. It’s so important it is valued in all ages. Some young adults are experiencing mental health issues and having a clinic to observe and support them who have great understanding of the condition would be extremely beneficial. DiGeorge syndrome can cause a range of problems, but most people won't have all of these. Some of the most common issues are: learning and behaviour problems – including delays in learning to walk or talk, learning disabilities and problems such as attention deficit hyperactivity disorder (ADHD) or autism speech and hearing problems – including temporary hearing loss due to frequent ear infections, being slow to start talking and having a "nasal-sounding" voice mouth and feeding problems – including a gap in the top of the mouth or lip (cleft lip or palate), difficulty feeding and sometimes bringing food back up through the nose heart problems – some children and adults have heart defects from birth (congenital heart disease) hormone problems – an underactive parathyroid gland (hypoparathyroidism) is common and can lead to problems such as shaking (tremors) and seizures (fits) Other possible problems include: a higher risk of picking up infections – such as ear infections, oral thrush and chest infections – because the immune system (the body's natural defence against illness) is weaker than normal bone, muscle and joint problems – including leg pains that keep coming back, an unusually curved spine (scoliosis) and rheumatoid arthritis short stature – children and adults may be shorter than average mental health problems – adults are more likely to have problems such as schizophrenia and anxiety disorders.

Children cross this road twice a day, at minimum, either going to or coming home from school. It’s a very busy road with cars coming round the corners and not slowing down for pedestrians crossing. Regularly there is a build up of pedestrians waiting to cross with nowhere safe to do so

The importance of this school to it's pupils and their parents is clear from their personal testimonies - This is a unique setting for our medal winning sportswomen and men of the future and present, many of the children at PSS will struggle to find schools with the same provisions, not only in sport, but the SEN support that's available. Dispite a recent disappointing OFSTED report (that we feel does not reflect the diverse work being done at Plymouth Studio School), children are thriving here.

If this proposal goes ahead it will mean reducing the number of class's from 5 to 4. Consequently each class size will increase significantly, meaning larger composite classes eg primary 1/2/3. This alteration is for 1 year only as the primary intake is larger for 2019. We believe this disruption will have a negative impact on our children's education and social development.

This another important service to Coventry people that is stealthy been made private. This service is vital to local people but also needs to be kept public and not fall into the hands of private companies such as Virgin or Care UK. In a city of over 300,000 people the GP Out of Hours Service at the Stoney Stanton Walk-in-Centre is essential to help stop our local A&E departments being overwhelmed. Please take the time to sign this important petition which we plan to hand into the CRCCG by the end of May. Many thanks from all at Coventry Keep Our NHS Public (COVKONP) campaign group.

Following the imminent re-development of St Philip’s Church Dorridge, and their subsequent relocation of groups to the St James’ site at Bentley Heath, lettings and storage space has been identified as a major problem. To alleviate the problem of storage and hall usage, and following discussions regarding the needs of St Philip’s and St James’ Churches, Noah’s Ark Playgroup were initially asked to vacate the premises by the end of July 2018. Having failed to find any suitable alternative premises in the local area, Noah’s Ark Playgroup would have been forced to close. However, following extensive negotiation between the Church PCC, Noah’s Ark Trustees and Staff, a compromise solution has been reached for now. From September 2018, Noah’s Ark Playgroup will remain open for two mornings per week, namely Monday and Tuesday. The PCC will review the situation by December 2018 at the latest, and advise Noah's Ark if they need to find alternative accommodation for the academic year 2019-20. This is a outcome many want to avoid. Noah’s Ark Playgroup has been providing a loving, nurturing, learning environment for children from Bentley Heath, Dorridge and Knowle for the past 15 years. Noah’s Ark Playgroup Trustees and Staff have undertaken what they can. It is our turn as parents and carers who have, are and intend to utilise, this ‘Outstanding’ Playgroup, to let our voices be heard and show our support for Noah’s Ark Playgroup, Staff and Trustees. Please will you sign this petition and write letters to: PCC Lay Chair Colin Revans Vicar Duncan Hill-Brown Highlight what a pivotal role Noah’s Ark Playgroup has played for the last 15 years and continues to perform today. In blessing and encouraging families through their ‘Outstanding’ (Ofsted 2016, 2009) provision within the Bentley Heath, Dorridge and Knowle communities. If you know of families in the area who plan to attend Noah’s Ark in the future. Ask them to contact Noah’s Ark today, to reserve their place as spaces are limited. For those families not using their full 15hrs of Government Funding. They can spread their funding across different providers. Please contact Noah’s Ark asap to sign up for the Summer Term, a few spaces are currently available. Noah’s Ark Playgroup can be contacted on Monday, Tuesday and Thursday between 0815hrs - 1300hrs, via email and telephone. [email protected] T: 01564 772113 Together we can make a difference and help keep this amazing Playgroup open for the next 15 years. Thank you for your time and support.

Olya has followed all the advice given to her and her husband by the Home Office, and all she wants is to live with her family in Scotland. But now she faces deportation away from her home because of a technicality. They claim her Scottish husband didn't do enough to make Ireland his centre of life, as per the Home Office’s advice, before coming to Scotland. They also have a two-year-old daughter, Milana, who was born in Scotland. Sign the petition to tell the Home Office to drop their threats and let Olya and her family live in peace. Their life is in Scotland, their child is Scottish. Don’t rip them apart.

My son Tom is a 28 year old young man with an acquired brain injury. The injury occurred in 2007 as the result of an infection just 4 days after his 18th birthday. He was doing well in his A levels, and then this awful tragedy happened. For the past nine years, he has been supported for care and accommodation by Continuing Healthcare (CHC) funding. Tom's condition means that he needs 2-1 care during daytime. Although his needs have become greater in that time -- his epileptic seizures are more pronounced and frequent -- his funding has suddenly been withdrawn. Tom is very much at risk of harm without this care: he cannot look after himself, and his behaviour is often challenging and unpredictable. A hurried and insufficiently attentive review has judged him ineligible for healthcare funding, because although his needs are 'High', they are not deemed 'Severe' -- even though his 'Behaviour' and 'Cognition' clearly meet the panel's own 'Severe' CHC criteria. None of Tom's carers or family agree with this decision but our responses and appeals have been ignored. Please help by urging NHS Coastal West Sussex Clinical Commissioning Group to change their decision and continue to fund Tom, as they have been doing for the last nine years. Tom is so vulnerable and really needs your support.

Most local residents and our visitors agree that the junction with the A4 at Beenham Hill is dangerous. If you are turning right to go towards Newbury you currently have to contend with • traffic heading east along the A4 • traffic turning right from the west, across the central reservation towards the hotel, the old houses which are along the main road and now the new development just past the hotel • traffic turning right from the east to cross to Beenham Hill • traffic coming out of the hotel and turning westwards OR crossing the A4 to go eastwards • traffic coming out of the new development to the east of the hotel and turning westwards OR crossing the A4 to go eastwards • traffic coming out of the existing road where the older houses are and turning westwards OR crossing the A4 to go eastwards • traffic heading west along the A4 Equally there is a problem when trying to turn right from the east to get to Beenham Hill, bearing in mind all the different streams of traffic. The central reservation area is not big enough for vehicles trying to go in the various directions and the road markings are inadequate and ambiguous. We urge the District Council and the Highways authority to install a roundabout as the safest option at this junction and to do it before a serious accident occurs. Some years ago Harts Hill from Bucklebury to Thatcham was changed from National Speed Limit to 40mph after a Beenham resident was killed there by a car driving too fast for the conditions. More recently changes were made to the A4 at Beenham following the death there of another Beenham resident. Let's hope we don’t have to wait for yet another Beenham villager to be involved in a fatality before this junction is made safe.

EYS D&G provide free baby massage and stay, play & learn sessions across Dumfries & Galloway for children 0-5 years. They also provide a 1-1 service working in the home with parents and children who are experiencing particular challenges. Parenting can be very overwhelming and isolating especially in a large rural area like D&G. These sessions provide parents with a safe place to relax, bond with their babies and meet other parents. The play sessions also help parents to understand the importance of playing and interacting with their children. There is a lack of provision in D&G for children 0-3 and these sessions provide a much needed life line for parents and children. Through many personal experiences and feedback we know that these sesssions have given confidence to parents and the impact this has on the development of the child is invaluable. People have made lifelong friends through these sessions and they NEED to remain funded. The benefit of this early years funding will help build a confident, happy support network and therefore a healthier and happier future for the children and families.

I cross this road four times a day, twice with my kids on my way to and from their nursery and it feels so dangerous. When my kids are older I want them to be able to walk to the park on their own but as it is I couldn't. Telegraph Hill is a fantastic community park for people of all ages. The upper park is accessed from Kitto Road to the north and Drakefell Road to the south. Drakefell Road is a heavy commuter route, and already has some traffic calming measures including road narrowing and speed humps. However, none of these are aligned with the entrance to the park which is opposite Aspinall Road continuing a footbridge over the railway line for pedestrians and cyclists. Cars still reach significant speeds and parking makes visibility from the kerb tricky for crossing, especially for children. Drakefell Road is therefore a significant barrier to a pleasant car free route that links St Asaphs Road to the south with Arbuthnot Road to the north. Signage identifies this as part of the London Cycle network linking Surrey Quays and New Cross Gate to the north with Crystal Palace and Honor Oak to the south. Installing a pedestrian crossing, whether pelican crossing or even just a traffic island would facilitate access to the park for people of all ages, and encourage non vehicular journeys between New Cross and Honor Oak. Potentially this could replace the width restriction / fire engine gate further to the east.

Not all nurseries or childcare providers in Scotland have trained staff in paediatric first aid on site to deal with immediate life threatening first aid emergencies like choking or asthma attacks. Infants and children, who need simple first aid treatment, before an ambulance arrives, are being put at risk everyday. In England and Wales, all childcare settings should have at least 1 member of staff with a 12 hour Paediatric First Aid qualification. This became law in September 2014. The tragic Millie Thompson case in 2012 brought into sharp focus the fact that paediatric first aid training can mean the difference between the life and death of a child. Since 2016 we have been asking the Scottish Government why this law can't be applied to all Early Learning and Childcare (ELC) Providers in Scotland, to bring us in line with England and Wales. We have discussed the issue with the previous and current Scottish Minister for Childcare and Early Years and had prolonged discussions with the Care Inspectorate (the government body responsible for inspecting childcare providers) but have been unsuccessful in moving this issue forwards. The Scottish government does not seem to think that any childcare staff on duty, when children are present in nurseries, or on visits, needs to hold a Paediatric First Aid qualification. In late 2016 we contacted all 32 Local Authorities in Scotland under FOI legislation to ask how many of their registered childcare providers had staff with Paediatric First Aid qualifications. Their replies were shocking: • 30% of Local Authorities said they did not require ELC Providers to have staff on site with a Paediatric First Aid qualification. • Of those that did require Paediatric First Aid training, this varied widely from 3 - 9 hours. There was no consistency of course length or course content across Local Authorities. Why a 12-hour Paediatric First Aid course? Not everyone realizes that first aid for infants and young children is quite different to that for adults. This course is seen as the ‘standard’ first aid course for childcare across the rest of the UK but not in Scotland. The training includes time to cover infant and child specific issues around CPR, asthma, febrile convulsions, recognition of meningitis and more. None of these are included on a standard Emergency First Aid at Work course. If the law were changed, to create parity between England, Wales and Scotland then this situation would be resolved instantly. The Scottish government is working towards doubling the amount of free childcare hours for parents of young children in Scotland. More children will be put at risk for longer, unless this change is made. Now is the prefect time for Maree Todd, Minister for Childcare and Early Years, to change the law. As other childcare legislative changes are enacted it is the perfect time to change the law to ensure that Early Learning and Childcare (ELC) Providers have Paediatric First Aid trained staff on duty when children are present, or on visits. Previous precedent’s concerning children and first aid People say to me, you will never persuade the powers that be to change their minds. Well there are some similar precedents to this situation regarding first aid training. In 2014 the English government issued new guidance on the use of asthma inhalers and adrenaline auto injector pens (EpiPens) so that schools and nurseries could hold a spare inhaler / auto injector in case a child lost of forget their own. It took till late 2017 for the Scottish government to follow suite and issue similar guidance, making schools and nurseries safer places for our children to be. The issue of Paediatric First Aid training for childcare and early learning providers is similar. The law changed in England back in 2014 so sometimes it does take a while for our government to catch up! Why should we have to wait for another young child to die in a nursery before the government acts? What can you do? • Sign our 38 degrees petition, asking Maree Todd MSP to change the law • Send a Facebook or twitter message to Maree Todd MSP • Write to Marie Todd MSP