• Provide hoists and wide, adjustable treatment beds in all GP surgeries
    In 2017 I was diagnosed with stage 4 bladder cancer. I live with Spinabifida and am a wheelchair user because I'm paralysed from above the waist down. It is not legally possible to prove, but it is my sincere belief that had I been examined earlier in the year using a hoist and adjustable wide treatment bed, my cancer may have been discovered sooner. Disabled people and particularly paralysed people, don't always feel changes in their body, so require better than average monitoring. This equipment would provide that extra safeguarding and would protect disabled people from developing further physical issues that cost huge amounts of tax payer's money to address and great distress.
    278 of 300 Signatures
    Created by Tracy Locke
  • Help Victoria get home to school transport
    Victoria uses a wheelchair and has been awarded transport for eight years, but now that she is 16 the funding has been stopped. I'm more than happy to pay towards the bus but Victoria's place has still been refused. The city council have said that travel assistance up to 16 is statutory but only "discretionary" for those of sixth-form age. Without transport Victoria who has a mental age of around 6, faces having catching two buses to get to Selly Oak Trust School everyday. Victoria uses a wheelchair for long distances. Victoria finds it difficult to understand danger or cope with busy places. It is extremely important that Victoria is allowed to carry on using the bus.
    11,314 of 15,000 Signatures
    Created by Nicola Leadbetter
  • Hull Paragon Station - keep the station accessible for disabled people! keep the gate open!
    For many disabled people this is the ONLY accessible route into the station. First Transpennine are suggesting that disabled people should call a mobile number and wait for a member of staff to open the gate. This will result in: • People being left, possibly on their own and feeling vulnerable, whilst they are waiting to be permitted entry. • Longer journey times –people would need to get the station earlier. • Unfair treatment – disabled people need to do something different to non-disabled people to gain access to the station. This will also impact on non-disabled people too!!! • Inconvenience, especially for occasional users, for example people going on holiday, with luggage and children, who are arriving by taxi, will have to wait for the gate to be opened or walk around the station. • Waiting time at the drop off point is 20 minutes – negotiating the closed gate will inevitably take longer than this now when picking someone up, increasing the risk of a financial penalty. The closure is being trialled to protect station staff, but disabled people shouldn't suffer because of this. Alternate solutions should be found that don't result in disabled people being left without access.
    53,737 of 75,000 Signatures
    Created by Tracy Dearing
  • Let Us In
    Wheelchair users are being discriminated against every day, in all walks of life - education, work, homebuilding and social life. They are being denied access to buildings, venues and premises that other people in our society enjoy. Non-wheelchair users are often unaware of the obstacles wheelchair users face. Wheelchair users may want to join in with things but are being denied the opportunity to. The world puts up so many barriers . For instance, going to the theatre is an experience enjoyed and cherished by many families, especially during the festive season. However, like many other activities, theatres and shows often fail to be wheelchair accessible. Although the accessibility of venues has improved, wheelchair access is often forgotten, or indeed never thought about. I acquired my disability in 2010, and was plunged into a World that I didn’t know existed. I found that I couldn’t go here, couldn’t go there, couldn’t do this, couldn’t do that. It’s torture. The Equality Act describes disability as a ‘protected characteristic’. However, the Act is neither monitored nor enforced. If I think someone is in breach of the Act, it is up to me personally to raise a court action. As the majority of wheelchair users will be surviving on DLA/PIP, this means that this is outwith the realms of affordability for most of us. Is it deliberately cost prohibitive? This Act is nothing more than lip service – a façade to wrongly give the impression that the Government gives a damn. I was concerned about the number of premises which appeared to be inaccessible in the City Centre of my home town of Edinburgh, so I undertook my own accessibility survey. The results revealed some gobsmacking figures. I surveyed 130 properties on Lothian Road/Bread Street/Grassmarket on the West side of the City Centre. A massive 95 (73%) are NOT wheelchair accessible. This is Edinburgh, home of the Edinburgh International Festival and World famous Hogmanay celebrations and Scotland’s capital city, in the 21st Century. It’s appalling. This means that I would have to raise 95 court actions! Everyone who asked what I was doing during the survey made the same comment – “I thought everywhere was/had to be accessible now/these days”. I am not niaive to believe that this situation is confined to one City. The issue exists in every village, town and City, UK-wide. Wheelchair access needs to be a pre-requisite of planning permission for old AND new buildings. Inaccessible premises change ownership, undergo extensive refurbishment and re-open as ‘newly opened’ businesses, and are still inaccessible! How is this being allowed to happen?
    403 of 500 Signatures
    Created by Shirley Todd
  • Keep Dave & Jarvis Together
    Although now retired the bond between Dave and Jarvis is extremely powerful. Not only has Jarvis been a wonderful guide to Dave but he has been and continues to be a great ambassador for the charity. In his time Dave has filled many volunteer roles with Guide Dogs as a branch chair, Volunteer Liaison Officer for the region, a speaker and fundraiser as well as organising the regional Guide Dog carol Service. Jarvis is a very nervous dog who frets when not around Dave yet Guide Dogs are using his welfare as a reason to remove him. How would removing him be good for that welfare in his old age. Jarvis is well known throughout the Church Of England and is known and loved by so many.
    673 of 800 Signatures
    Created by David Lucas
  • Get our SEN children the help they need without the long waiting times
    My Son has missed out alot of his childhood which should be "the best days of our lives" and he's only 8. He's got a disability along with other issues that have an impact on his life and being able to socialise with his peers. He was out of school for a while with very little support from the Local Authority which meant me having to go off work to care for him. He's been waiting for 5months for an appointment with CAMHS with no help or support in the mean time. It's not fair that our youths are being failed big time, especially the ones that may need the extra help and support than others!
    151 of 200 Signatures
    Created by Michelle Thomas
  • Restore full funding to Saxon Hill Sleepover Club (Lichfield)
    Saxon Hill Acadamy is a special needs school in Lichfield for children up to the age of 19. It currently runs a Sleepover Club where students can stay overnight. At the moment this runs four nights a week during term time. This provision provides a place where the students can socialise together, something which is difficult outside this setting due to the complex needs of these young people. As well as the social side it also helps with independence away from the family. The staff help the students to reach their potential in a safe and happy environment. This a unique service not provided by many other places and is important to the pupils, families and staff of the school. I speak from experience having been a pupil at Saxon Hill Acadamy and attending sleepover club for many years. I believe it helped the move to residential college easier for me when I left at 19 and gave me the confidence to succeed in the future. I am currently working in theatres and I am the disability officer for a local political party. The County Council have just announced that they are cutting funding to the sleepover club which means places are being reduced from 44 to 33. This means 11 students will have their places taken away from them. This will happen from the 1st April 2019. Furthermore the contract is only being given for one year and will then be reviewed before next April. This means sleepover could be closed next year. This is an important facility that needs to be saved and have it’s funding restored.
    1,728 of 2,000 Signatures
    Created by Shaun Waters
  • Stop threats of EWO Action to Parents of SEND Children for low school attendance related to needs
    It is very important that this step or similar is included in Section 444 of The Education Act to avoid what is currently taking place for some families. Of course parents who are not bothering to take their children to school for no good reason should be dealt with. However, when you have disabled children or in my case Autistic children the causation of lower attendance can be for very different reasons. For example, numerous legitimate hospital and clinic appointments can soon lead to lower attendance levels and children being flagged up for concerns. This is especially true during the statutory assessment process when there are lots of appointments with professionals and assessments undertaken. I have autistic children. Children with high levels of anxiety around social interactions with associated sensory processing dysregulation who need a higher level of support. Getting that support in place can be a protracted process where budgets available to support are already stretched. Sometimes support fails and needs updating or amending. Again unfortunately this tends not to happen quickly. In the interim, while children are waiting for help to be put in place it can lead to very real school based anxiety reflected very often in school refusal or lateness. This is a very different kettle of fish. I believe that there should be a separate process for these situations and that is a simple fix by way of an amendment or exclusion. Too often EWO action is used as the first response and this can really frighten parents who are already parenting under pressure. This response to difficulties doesn't help the child and it certainly doesn't solve the situation. I feel it is not what Section 444 was designed for. I live in Exeter, Devon. I am currently party to such a situation. I have an autistic child in the middle of a statutory assessment. I am nearly at week 20 of the process. Many needs have been identified including new diagnosis and the local authority in charge have confirmed that they will issue an EHCP in response to those needs. Those needs include Autism, Attention Deficit Hyperactive Disorder, Cerebral Palsy, Sensory Processing Dysregulation, Dysarthria. This is a child with many barriers to the mainstream school environment. In the interim whilst needs are identified, there is still no Education, Health, Care Plan (EHCP) in place and subsequently no extra funding available to deliver extra help in school. SEND Support has not been stepped up in response. SEND Support comes out of a budget which is not ring fenced and so many schools in the current climate simply do not have money available. Children have very often already broken down or are suffering by the time all of the i’s are dotted and t’s are crossed. My son is presently in limbo without the support that he needs being put in place. As a result, his anxiety has increased around going to school, in the absence of any consistent support to the recommendations around this, we have had to bring him into school slightly later to avoid the sensory overload (noise, visual stimulation) that the very busy mainstream morning school environment causes him. This has got much worse, the longer his now very much identified needs have gone unidentified and unmet. He will be 6 years old in the summer. The first response of the school and the local authority has not been to support us and work together to put support in place with the professionals around the child, but rather to fire out an EWO letter to us with no prior meeting to discuss or resolve. Fire this letter knowing full well that this child has special educational needs and that he is in the middle of this statutory process. We have done our level best as parents, contacting the team around the child as the difficulties began to present themselves and we have asked for their help. We wait hopefully for a response. Also sometimes attendance issues can be the first red flag for children who have special educational needs or disabilities. This should be factored in to my mind when the school or local authority are noticing attendance issues. Is this being caused by SEND? Section 22 and 23 of the Children and Families Act highlights statutory duty around these children. Section 22: The duty of Identifying children and young people with special educational needs and disabilities and Section 23: The duty of health bodies to bring certain children to local authority's attention. SEND as a causation should surely be the FIRST possibility ruled out? Lots of parents to disabled children become so afraid with this gun being held to their heads that they deregister and home educate their children rather than face a legal battle. Section 444 shouldn't cause exclusion of disabled/SEND children from school, backing helpless parents into a corner? That cannot be allowed to be the knock on effect of this law! It needs to be amended or SEND children need to be excluded. EWO letters/action clearly are not a helpful response to unmet special educational needs for disabled children. For lots of parents this can cause more very real worry, distress and anxiety on top of what is already a difficult situation. Section 444 allows in extreme cases for action towards parents that falls under criminal law. This is not an appropriate road to travel in these circumstances. As a seasoned and experienced parent to SEND children, I can confirm that It's a common nationwide practice that I see occur more often than it should do. I don't believe that the intention of this law was that it be used in this way towards disabled/SEND children and their parents/carers and that there should be clear steps involved in the process to prevent this from happening or that disabled children should be exempt from Section 444 and different legislation be applied altogether.
    3,832 of 4,000 Signatures
    Created by S McGrath
  • Scrap Disabled Parking Charges in Newcastle
    Disabled Blue Badge holders rely on their cars to visit the doctor, go shopping or take part in leisure activities. They can't use public transport. Charging Disabled Blue Badge holders to park is punishing them for being disabled. It sends out a message that disabled people aren't welcome in Newcastle. Blue Badge holders may choose to go elsewhere, impacting on the city's economy or park on double yellow lines causing congestion. How is this Creating Decent Neighbourhoods? How is this tackling inequalities? How is this showing that Newcastle is open for business? Charging disabled residents and visitors to the city to park is detrimental to both the disabled person and Newcastle.
    182 of 200 Signatures
    Created by Lizzie Mc
  • Provision of Specialist Autism Support for Sandwell Families
    We have already written to you to raise this subject but this is a brief summary of why this issue is important. Autism is no worse or more complex than any other condition. It’s just different. Families need advice that is specific to autism as many of the usual ways of communicating, teaching and managing behaviour is different to the norm. Every autistic person is different so you need a specialist who can tailor advice to your individual needs. Autism is the only disability to have its own act of parliament to focus upon and direct the services that should be available to autistic people. Having the wrong advice can make the situation worse. To support their children parents need to understand their child and how they can help them. When carers are better supported the cared for has better outcomes.
    761 of 800 Signatures
    Created by Rebecca Harris
  • Carers allowance to be increased to minimum wage
    I’m the main carer of my 2 daughters It seems you are able to claim this allowance if you care for another person for 35 hours or more per week If this person was in state care the care worker or personal assistant would be paid £8.21 or more for doing the same job... This needs changing . It beggars belief that people are paid £1.84 per hour because you are a parent , family member or friend My youngest daughter has cerebral palsy and complex medical needs which are also life threatening My oldest daughter has autism high functioning . I have dedicated my life to look after my family as that’s my duty as as a parent. But can honestly say what a challenge it’s been over the years as their both 24 & 25 years old now . There’s been plenty of sleepless nights and endless days of worries wondering if you’re child or loved one will pull through whatever life has thrown at them On two occasions my daughter has fought for her life and all we could do was pray she’d pull through. Luckily she did and I’m telling you what it’s like to be a Carer Carers story. Our day starts between 3-4am each morning when toilet duty starts with my youngest as she’s got digestive problems too along with severe epilepsy so she can’t be left alone. We’ll get her back to bed around 5 am if we’re lucky we’ll go asleep until say 6 or 7am . When Jodie wakes up again I have to give breakfast and meditation after that it’s shower time . After all personal cares have been done we’re normally back on toilet duty which we must do at least 30 times per day as jo also has short term memory loss . In between personal cares etc there’s housework, shopping and entertaining the person you are looking after. There’s endless hospital appointments to attend especially if the person has complex medical needs . This can have a huge impact on the Carers mental health and general wellbeing. The feeling of isolation a Carer or family member may feel from time to time can be quite overwhelming . If you are a Carer and also the parent you are classed as their legal guardian which means you’re responsible for every aspect of the persons life !!! What a responsibility. My health suffered badly as I ended up with a over active thyroid, TED and had a stroke , copd Before this I was working part time in the NHS in learning dis & mental health as a Support Worker . Again whilst working there I witnessed firsthand how much is expected from parents and most are at breaking point as they have been a Carer for so many years. I loved my job but I found I didn’t have enough of me to go around and my family had to come first so I resigned .. I know a lot of families who have children or young adults and elderly relatives that dedicate their lives to their family and with no support financially or emotionally. I’ve also known lovely families who have had so much to deal with their relationship with their partner has broken down . It’s an insult to think it’s acceptable to pay a shocking £1.84 per hour to a Carer .. you have to look after the person for 35 hours or more per week to receive £64.60 I do what I do for my daughters through love I don’t see it as a job but the government clearly does as your not allowed to earn over £120 per week if you do you don’t qualify but your still Caring . I don’t claim any benefits as my husband works full time but I do receive Carers allowance. I also set up a social club for young adults over 16 with disabilities and complex medical needs I do this voluntary. Again lack of services for the most vulnerable in our community. Thank you for taking the time to read this rather long message. Please get your friends and family to sign and share and get our Carers what they deserve and that’s fare-pay
    763 of 800 Signatures
    Created by Debbie O'brien
  • Reinstate free disabled parking at Guildford railway station
    The regular trips with my daughter to Great Ormond Street Hospital just got even more expensive. Free disabled parking has been scrapped. There are no hourly rates and no concessions. It costs £15 to park. Disabled people have a daily struggle to get to places. APCOA now manage car parking for National Rail at Guildford Station and the car parking at these venues for disabled blue badge holders is no longer free. This is causing disabled people not only financial issues but is massively impacting on their day to day stress levels. I've just started this petition and would be really grateful if you could take the time to sign it. Thanks so much.
    124 of 200 Signatures
    Created by Bethany Halliday