• Stop Govt selling our confidential medical records and ID
    Kevin Donovan of Defend the NHS says the following: You may have read in the press or online (or more likely may not have heard) about the major health data collection exercise which the government has initiated. Under changes to legislation, your GP can now be required to upload personal and identifiable information from the medical record of every patient in England to central computer servers at the Health and Social Care Information Centre. Once this information leaves your GP practice, your doctor will no longer be in control of what data is passed on or to whom. And private companies will be able to buy your information for just £1 (ONE pound!). This information will include diagnoses, investigations, treatments and referrals as well as other things you may have shared with your doctor including your weight, alcohol consumption, smoking and family history. Each piece of information will made identifiable by uploading it along with your NHS number, date of birth, post code, gender and ethnicity. Health data has always been collected* but this time it’s different. NHS England – the body now in charge of commissioning primary care services across England – will manage and use the information extracted by the Health and Social Care Information Centre for a range of purposes, none of which are to do with your direct medical care. These ‘secondary uses’ include patient-level tracking and monitoring, audit, business planning and contract management. Why should we worry? It seems clear that one hidden purpose of this exercise is to lubricate the galloping ‘marketisation’ of our health service, for example to allow health insurance companies to make huge profits from cherry-picking low risk patients for health cover. Over time, and as in the USA, if we can’t afford a health insurance premium (which is very likely if we are poorer and/or have any condition which may be expensive to treat) we won’t get free access at the point of need to medical care. It’s a nightmare! GPs’ hands are tied. They have been told it’s an offence not to provide the data. But patients can choose not to do so. How? Read these articles. In paragraph 4 you can download an opt-out letter for you to complete and use (template opt out letters for patients to use). http://www.pulsetoday.co.uk/your-practice/practice-topics/it/eight-weeks-to-inform-patients-their-data-is-going-to-be-harvested-gps-warned/20004562.article#.UlF8er5wbmR http://medconfidential.org/how-to-opt-out/ http://opendemocracy.net/ournhs/phil-booth/your-medical-data-on-sale-for-pound http://medconfidential.org/2013/nhs-9-who-gets-to-see-your-information/ We doubt that many people know what’s happening – especially older patients and/or those without Internet access – so please distribute this information widely to your contacts and urge them to take action NOW. It’s OUR NHS not the government’s to sell off to their friends in the City. Thanks
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  • Advanced Prostate Cancer Drug Enzalutamide after the use of Abiraterone
    Men who have been given Abiraterone and have had the expectation of receiving Enzalutamide after Abiraterone failure, are now denied this potentially life saving treatment. They are now going to die!
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  • Save the Liverpool Care pathway
    It's important that patients in England can and rightly should expect to be treated with care, compassion and that every attempt is made to preserve their dignity at the end of their life. This is important not only for the patient themselves but also their families. The Liverpool care pathway is used in situations where modern medicine is unable to prevent a patient's deterioration and where they are expected to die within the next 48-72 hours. It ensures that symptoms which are entirely predictable and a natural part of dying are assiduously looked for and controlled to ease a person's suffering at the end of their life. The loss of the pathway will effectively remove medical ad nursing staff's ability to ease patients' suffering as they are dying and will lead to futile and extraordinary measures to prolong life where there is no chance of improvement or recovery. At a time when families should be able to calmly reflect and celebrate the lives of their loved one in peace, instead patient's final days and hours will be transformed into a frenzied circus of intravenous cannulae placement, nasoenteric feeding tubes, 6 hourly infusions of fluids and antibiotics and cardiopulmonary resuscitation. Allow patients to die in peace and enable our hospital staff to facilitate this as they have been doing since the inception of the Liverpool pathway.
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  • Protect Derby Carers' Services
    Carers usually carry on looking after other(s) until they drop. Carers services help stave off this for very modest sums. If they cannot care as they are doing, the financial costs fall on the NHS, Derby council etc. Carers are twice as likely to go to their GP's as the general population. Carers are adults as well as children and it's estimated there are 5,000 of them just in Derby. We need your help to demonstrate the community supports this campaign by 4th January when the Derby City Consultation closes.
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